Case Review – December 2023

DECEMBER 14, 2023 –

Case Review – December 2023

Parkinson’s Patients With Advanced Dementia Left In Dangerous Limbo

In this brief but impactful session, Katherine explored the rising diagnosis rate of Parkinson’s every 6 minutes, emphasizing the crucial role of medical professionals, staff, and Patient Advocates in educating and supporting patients with extended lifespans. The discussion delved into reassessing standards of care for Parkinson’s patients and the specific challenges faced by family caregivers. These conversations are important as we seek to establish stop-gap measures and ensure a safer healthcare journey for patients and caregivers alike.


Speaker – 

Katherine Autin is a Parkinson’s expert, Board Certified Patient Advocate (BCPA), caregiver coach, educator, trainer, and speaker. For 40 years, she has been a visionary entrepreneur in the jewelry business as a designer, manufacturer, and a business and marketing consultant for women business owners. She is a Past President of the Louisville National Association of Women Business Owners (NAWBO). In 2004, her husband was diagnosed with Parkinson’s disease, which changed the direction of her entrepreneurial journey. Katherine founded Parkinson Partners, LLC (PPLLC) in 2012 to advocate for, educate, and help people with Parkinson’s disease and their family caregivers through a very complicated journey. She has helped hundreds of Parkinson’s families over 18 years. Continuing her caregiver journey, in 2018, she became one of the first in the country to be recognized nationally as a Board Certified Patient Advocate (BCPA). Katherine created the Visionary Caregivers Mastermind program in 2021 where she encourages caregivers to help each other, guiding, teaching, and inspiring them to not just survive, but laugh and find fulfillment in their difficult journeys. Katherine trains staff at senior living facilities and home care companies. She also leads monthly virtual and in-person Parkinson’s support groups in Louisville, Kentucky and is known as the “Parkinson’s Lady.” Katherine is originally from Alexandria,Virginia.


The HealthAdvocateX Board has approved this activity with the following caveats:

  • Only HealthAdvocateX Professional Members in good standing will be invited to participate
  • Meeting participants will sign a confidentiality acknowledgement in keeping with professional standards at sign in as a requirement to participate
  • Cases will all be presented in a similar format and will be submitted to HealthAdvocateX at least one week in advance of the meeting for consideration
  • The Advocate presenting the Case will do everything to de-identify the person featured in the case review
  • No case information may be shared outside the case review meeting
  • The meetings will be a free, one-hour meeting as a benefit of professional membership
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